The Duchenne Registry 3.3.5

The Duchenne Registry 3.3.5

Hello Thread  ❘ Freeware
iOS
out of 5 votes
Latest Version
3.3.5
Safe to install
EXCELLENT User Rating

This Registry is dedicated to individuals diagnosed with Duchenne or Becker muscular dystrophy, as well as carriers of Duchenne or Becker. Parents and guardians are welcome to register on behalf of children and teenagers affected by Duchenne/Becker. Additionally, individuals living with or caring for adults with Duchenne/Becker can contribute to the Registry by answering questions on their behalf. Please note that each registrant is limited to one account in the Registry.

The primary objective of this Registry is to collect information that can be easily accessed and utilized while safeguarding your privacy. By offering access to data from the Registry, clinicians, researchers, and pharmaceutical companies can enhance their understanding of Duchenne and Becker, ultimately streamlining the research and clinical trial processes. Moreover, the Registry provides access to information about clinical trials and research studies that may be suitable for you or your family.

As part of our efforts to comprehensively comprehend your health and daily experience with Duchenne/Becker, we will prompt you to complete various surveys. Returning Duchenne Registry participants will find their most recent survey data pre-populated upon downloading the new app. You will also be asked to provide a copy of your genetic test report, with the option to choose the extent of information you disclose. The more comprehensive your data contribution, the more insights we can provide to researchers and the better we can tailor information to meet your individual needs.

Your personal details and contact information will never be shared without your explicit consent. The Duchenne Registry prioritizes safeguarding your privacy and identity and employs all necessary measures to secure your personal data. To facilitate advancements in Duchenne research, we will share de-identified data with eligible researchers worldwide. De-identified indicates that personal identifying details, such as names and addresses, have been removed. Requests for data undergo thorough evaluation by the Registry team to ensure relevance and significance for the community.

Participating in the Registry is entirely voluntary—it is at your discretion whether you choose to take part. You have the freedom to discontinue participation at any time for any reason, without facing penalties or being required to provide an explanation if you opt-out or withdraw from the Registry later on.

Overview

The Duchenne Registry is a Freeware software in the category Home & Hobby developed by Hello Thread.

The latest version of The Duchenne Registry is 3.3.5, released on 09/24/2024. It was initially added to our database on 09/24/2024.

The Duchenne Registry runs on the following operating systems: iOS.

Users of The Duchenne Registry gave it a rating of 5 out of 5 stars.

Screenshots (Click to view larger)

Related


Diabetes Diet - Proper Nutrition for the Diabetic

The Diabetes Diet app presents itself as a practical resource for individuals seeking to improve their dietary habits in managing diabetes.

Parent Project MD

End Duchenne. Parent Project Muscular Dystrophy (PPMD), an organization at the forefront of the battle against Duchenne muscular dystrophy, has developed a comprehensive mobile application designed to provide crucial resources for families …

The Morgan Method

The Morgan Method offers a distinctive approach to body transformation, incorporating hybridized lifting techniques and tailored training splits.
Secure and free downloads checked by UpdateStar

Stay up-to-date
with UpdateStar freeware.

Latest Reviews

G GS Modellbahn-Verwaltung 6D
Streamline Your Model Railway Management with GS Modellbahn-Verwaltung 6D
LLVM LLVM
LLVM: The Compiler Infrastructure Revolution
MatterControl MatterControl
MatterControl: The All-in-One 3D Printing Management Software
SignumOne SignumOne
Revolutionizing Communication with SignumOne
S snow white solitaire charmed kingdom
Unleash Your Inner Disney Fan with Snow White Solitaire: Charmed Kingdom
R Rescue Quest Gold SE
Embark on a Charming Adventure in Rescue Quest Gold SE
UpdateStar Premium Edition UpdateStar Premium Edition
Keeping Your Software Updated Has Never Been Easier with UpdateStar Premium Edition!
Microsoft Visual C++ 2015 Redistributable Package Microsoft Visual C++ 2015 Redistributable Package
Boost your system performance with Microsoft Visual C++ 2015 Redistributable Package!
Microsoft Edge Microsoft Edge
A New Standard in Web Browsing
Google Chrome Google Chrome
Fast and Versatile Web Browser
Microsoft Visual C++ 2010 Redistributable Microsoft Visual C++ 2010 Redistributable
Essential Component for Running Visual C++ Applications
Microsoft Update Health Tools Microsoft Update Health Tools
Microsoft Update Health Tools: Ensure Your System is Always Up-to-Date!

Latest Updates


Puzzle Shapes: Games Toddlers 2.5.2

This educational application offers a comprehensive selection of building blocks and puzzles designed to engage young children in meaningful learning experiences.

Bouncing Burger 1.3

Welcome to Bouncing Burger Game. This game challenges players to maintain the burger's bounce by tapping accurately to prevent it from hitting the upper or lower boundaries.

Smiley-Meet people&Video chat 1.0.1

Smiley - Meet People & Video Chat with Strangers is a free live video calling application designed to facilitate spontaneous video conversations with random users.

Camera Voice & Text Translator 2.0.4

The Camera Voice & Text Translator application presents a comprehensive translation tool designed for a diverse range of linguistic needs.

Карточки для детей 2.0.16

This application is designed for early childhood development, featuring a comprehensive set of flashcards themed around animals, objects, and everyday items.